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February Fundraiser
We continue our preparation for the February fundraiser. We do need your continued support if we are to help families impacted by rasmussen’s as well as continue to fund path breaking research...
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Always Rasmussens
A mom of a child with rasmussens recently asked me if I refer to Grace as still having rasmussens even though Grace is post-hemispherectomy and seizure free. This question made me realize that many...
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RE Hero
I have frequently written about how fortunate we are to live during the time of the internet and social media where we are empowered to reach across the globe and connect with one another. We are...
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My Life With RE
Scientific Advisory Board Members: Chris Cotsapas, Yale University; Helen Cross, Great Ormond Street Hospital, Gary Mathern UCLA Click on the highlighted link to see our story which made the cover of...
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Lifting For Grace VI
On March 13th and 14th the Blue Wave Football Team will compete against rival Brien McMahon in a lift-a-thon with a twist. The teams will lift weights, lots of them, but more importantly, they will...
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Westwood UCLA 2014 Conference Notes
I am delighted to report that the scientific notes from the latest research conference held two months ago on the campus of UCLA are now available. These notes represent the latest science and...
View ArticleNeed Funds
We are in the early stages of looking at post high school alternatives and it is a real challenge to navigate the labyrinth of schools available to young adults with learning and physical disabilities....
View ArticleMore Postcards
I continue to be contacted by parents from every corner of the world desperately seeking help for their children. Most recently the e-mails have come from Israel, Rumania, and in the States from...
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In Memoriam: Pouneh Bahri
A year ago a terrible tragedy happened to a very special person, Pouneh Bahri. After enduring the hardship and tragedy of Rasmussen’s encephalitis, and then striving to find her own way in life, she...
View ArticleTouching base
I heard from one of my research friends that there is promising news coming out of France about TNA alpha inhibitors and their success in stopping RE. TNA alpha inhibitors are a class of drugs that...
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